Who is Nicky?
The driving force behind the creation of the charity
Nicky is an affectionate young adult man who loves fresh air, music, and watermelon. He receives 24/7 care and attention from his family and caregivers and is waiting for his very own first home. Parents of ID adults, just like Adriana, want to rest assured that their "Nicky’s" live happy, fulfilling, and healthy lives, in a place of peace, that is run with compassion and care.
Gardens of Hope
As an adult, Nicky is bigger, stronger, and much more aggressive than when he was a child. His physical care & medical needs are greater, and he requires more intensive levels of intervention. Typical group home settings are not adequate to ensure he is treated with the care and attention needed to provide dignity and quality of life. There is a great need to create, develop and and plan homes with a long-term, inclusive vision.
Tuberous Sclerosis Complex
Nicky was born with tuberous sclerosis complex or TSC. At 3 months, he began having infantile spasms, which became full-blown seizures that would occur up to 100 times a day. After two session of surgical therapy, the seizures stopped, but there was irreparable damage to his brain. While the beauty in his existence and resilience is beyond measure, the differences between the level of independence between a healthy child and child with a disability are high.
